时间：2026-10-21     【转载】

10月22日，江苏省扬州市孤独症科普馆开馆启动仪式在市妇女儿童医院三楼举行。省、市残联及市卫健委、医院班子成员、儿童康复科和儿保科心理科专家、孤独症家庭代表参加。与会领导共同点亮“正式开馆”字样，并实地参观展馆。扬州市残联表示，科普馆是落实《扬州市孤独症人群全程关爱服务实施方案（2025—2028年）》的具体举措，重在补齐早期科普宣教短板，推动关爱服务关口前移、科普下沉、预防前置。

把科普做在前面，让家庭少走弯路

当前，我国0-6岁儿童孤独症患病率约为7‰。从扬州市残疾儿童基本康复救助申报数据看，孤独症儿童数量逐年增长，2026年申报1037人，已占年度残疾儿童康复总人数一半以上。扬州市残联在服务中发现，社会认知短板仍是最大痛点：不少家庭把孤独症简单等同于“性格内向、胆小慢热、家庭教育问题”，部分孩子因此错过3岁前黄金干预窗口。

正是着眼这一现实，市残联联合市妇幼专门打造孤独症科普馆，将多年政策实践、康复经验、服务成果系统化、场景化、可视化呈现，重点服务普通家庭和学生、康复路上的家长、社会各界和各级领导三类群体。在残联看来，科普馆的价值不在展板，而在“前哨”：让普通家庭先懂一步，让家长少走弯路，让社会多一分理解。这比事后补救更划算，也是全程关爱链条必须补上的第一环。

救助托底与全程服务同步发力

对孤独症家庭来说，最实在的支持是政策可及、服务可找。近年来，扬州市残联持续完善康复救助政策体系：2019年在全省率先将救助年龄拓展至0-17周岁，0-6周岁孤独症儿童年度基本康复救助标准2.24万元/人，7—17周岁1.86万元/人；全市布局15家孤独症定点康复机构，实现区域服务全覆盖。2025年，扬州市出台全程关爱服务实施方案，构建“筛查—诊断—康复—教育—就业—托养—社会关爱”全生命周期服务体系。2026年，全市建成7家孤独症自助互助服务点，累计开展活动81场次、服务3486人次，并依托恒爱融合发展中心、博爱阳光家园打通成年后康复衔接、社会融入、辅助就业等后续服务。

这些举措，一头连着康复救助的“真金白银”，一头连着家庭照护的“急难愁盼”。残联既要托住底线，也要把服务送到家门口；既管儿童康复，也向全生命周期延伸。这是民生工程，也是社会治理的必答题。

“五维守护”要把“伸在半空的手”接稳

参观中，“五维守护”墙令不少与会者驻足：医疗给方法、残联给托底、教育给舞台、家庭给根基、社会给土壤。“一双手是有限的，五双手是一张网。”市残联有关负责人表示，科普馆不是“建成即结束”的工程，下一步将持续更新展陈内容，系统整理《扬州孤独症儿童服务白皮书》，把筛查干预数据、五维守护经验、自助互助服务点做法、融合教育与社会支持探索以及家庭真实诉求沉淀下来，边实践、边完善，为全市孤独症全生命周期关爱服务提供可参考、可推广的“扬州样本”。

On October 22, the opening ceremony of the Yangzhou Autism Awareness Science Museum was held on the third floor of the Yangzhou Municipal Women and Children's Hospital. Representatives from the provincial and municipal Disabled Persons' Federations, the Municipal Health Commission, the hospital leadership, experts from the pediatric rehabilitation and child healthcare psychology departments, and family representatives affected by autism attended the event. Participating leaders jointly lit up the words "Officially Open" and then toured the exhibition hall. The Yangzhou Disabled Persons' Federation stated that the science museum is a concrete measure to implement the Implementation Plan for Full-Process Care Services for People with Autism in Yangzhou (2025–2028), with the focus on addressing the shortfalls in early public education and outreach, and on advancing the shift of care services earlier in the process — bringing science popularization to the grassroots and prioritizing prevention.

Putting Science Education First, So Families Take Fewer Detours

Currently, the prevalence of autism among children aged 0–6 in China is approximately 7‰ (7 per 1,000). According to Yangzhou's application data for basic rehabilitation assistance for children with disabilities, the number of children with autism has been rising year by year; in 2026, 1,037 applications were filed, accounting for more than half of the total number of children with disabilities receiving rehabilitation services that year. In the course of its services, the Yangzhou Disabled Persons' Federation found that the gap in public awareness remains the biggest pain point: many families simply equate autism with "introversion, shyness, a slow-to-warm-up temperament, or problems with family upbringing," and some children therefore miss the golden window for intervention before the age of three.

It was with this reality in mind that the Municipal Disabled Persons' Federation, together with the Municipal Women and Children's Hospital, specially created the Autism Awareness Science Museum — presenting years of policy practice, rehabilitation experience, and service achievements in a systematic, scenario-based, and visualized form, with a focus on serving three groups: ordinary families and students, parents on the rehabilitation journey, and all sectors of society together with leaders at various levels. In the view of the Federation, the value of the science museum lies not in its display panels but in its role as an "advance post": enabling ordinary families to understand one step ahead, helping parents avoid detours, and fostering one extra measure of understanding in society. This is more cost-effective than remediation after the fact, and it is also the first link that must be added to the full-chain care system.

Safety-Net Assistance and Full-Process Services Advancing in Tandem

For families affected by autism, the most tangible support is policies that are accessible and services that can be found. In recent years, the Yangzhou Disabled Persons' Federation has continuously refined its rehabilitation assistance policy system: in 2019, it took the lead in the province in extending the assistance age to 0–17 years, with an annual basic rehabilitation assistance standard of 22,400 yuan per person for autistic children aged 0–6 and 18,600 yuan per person for those aged 7–17; across the city, 15 designated autism rehabilitation institutions have been established, achieving full coverage of services by region. In 2025, Yangzhou issued its full-process care service implementation plan, building a full-life-cycle service system of "screening — diagnosis — rehabilitation — education — employment — residential care — social care." In 2026, the city built 7 self-help and mutual-aid service points for autism, holding 81 activities cumulatively and serving 3,486 person-times, and, relying on the Heng'ai Inclusive Development Center and the Bo'ai Sunshine Home, connected the follow-up services of post-adulthood rehabilitation transition, social integration, and supported employment.

These measures connect, on one end, the "real money" of rehabilitation assistance, and on the other, the urgent difficulties, worries, and hopes of family caregivers. The Federation must both hold the bottom line and deliver services to people's doorsteps; it must attend to children's rehabilitation while also extending toward the full life cycle. This is a livelihood project, and also a question that social governance must answer.

The "Five-Dimensional Guardianship" Must Steadily Catch the "Hands Reaching Out in Mid-Air"

During the tour, the "Five-Dimensional Guardianship" wall drew many participants to a pause: medicine provides methods, the Disabled Persons' Federation provides the safety net, education provides the stage, family provides the foundation, and society provides the soil. "One pair of hands is limited; five pairs of hands are a network," said a responsible official of the Municipal Federation. The official noted that the science museum is not a project that is "finished once built"; in the next step, it will continuously update its exhibition content, systematically compile the Yangzhou White Paper on Services for Children with Autism, and distill the screening and intervention data, the five-dimensional guardianship experience, the practices of the self-help and mutual-aid service points, the explorations in inclusive education and social support, and the genuine appeals of families — improving through practice as it goes, so as to provide a "Yangzhou model" that can be referenced and replicated for the city's full-life-cycle care services for autism.